This is one of the oldest, most natural and primitive of human fears. It is the tohu wa-bohu (Hebrew: תֹהוּ וָבֹהוּ) that was in “the deep” better translated as chaos than “formless and void” in the Genesis myth. It is why ancient myths predating that had gods carving up the world out of conquered sea monsters or serpents.
It is almost always true that when I am not writing as much as I would like on the interwebs, I have not been writing enough elsewhere: In that journal that sits by my bedside and in my poetry journal. I have a tendency to forget the importance of processing life as it happens. Really, it’s not so much that I forget. It’s more like I am afraid of what I’ll write. As a species, we humans have conquered the void. We’ve sailed to the “edges” of the earth. We can board a plane and sail on wings, high above the sea, and travel to another continent in a day. Most of us believe, we even put a man on the moon. What I think a lot of us are really afraid of – what I am really afraid of – is the sea of chaos that resides within: the anxiety, the fear, the painful memories, the wonder, the mystery, our great potential to both heal and destroy.
My eight years of academic training in religion primarily consisted of writing research papers on some topic of dispute in Christian circles. I was trained to do weeks of research and reading, weighing and considering three sides to every story, before I sat down to write. I would evaluate all of the possible data and opinions I could find. I would read twelve different translations of a single Bible passage or study multiple theological positions about everything from “predestination” to human sexuality. And then I would sit down to tentatively write a paper. Almost everything began with a title that hung my weeks’ of preparation, investigation and my hesitancy out for my professors and my peers to see. Everything was: Towards a Theology of… [fill in the blank with divisive theological or social issue].
I can’t fully blame the training. It only reinforced a fearful and hesitant predisposition. My professors always encouraged me to argue more, to take more of a stand on an “issue.” But when I did it seemed to get me in trouble. Like when I turned in an “extremely well written” final paper exploring the instructions for warfare in Deuteronomy 20. I contended, and still do, that there is no way a god of love would ever command “holy war” or instruct for women and young girls to be taken, listed right next to livestock, as spoils of war. My professor found me to be “treading into heretical waters” but still gave me an A for arguing clearly and concisely.
Fortunately and unfortunately for me, writing is the primary way I process life. And I have often approached life, and my writing about my life, the same way I approached those papers. I stopped writing when I met my ex-wife. I didn’t write through our engagement. I didn’t write about our wedding day on or remotely near the time it happened. Instead, I found myself 6 months after we had been married, cracking open my journal and writing about the events of the year and a half that had past. My children were each at least a year old before I reflected on their births in my writing. The same with my subsequent divorce. My lifelong friendship with Amanda, that blossomed into something new and beautiful, yet deep and rooted. My ordination. My 2 year struggle to find placement in a church. My expulsion from the first church I served. And deconstructing a lot of things I believed for the first 35 years of my life, about god, the world, and myself. Much of this showed up in series I wrote last year around this time. It’s no wonder that in much of my writing, I am still wrestling with the positive and negative impact of my mother’s life on me, nearly a decade and a half after her passing.
A few months ago, something in me snapped. In October, my daughter who had been expressing suicidal ideation since July expressed it for the first time in front of me. I came home and wrote about it that night. While my heart was broken (and still is), I think the change within me was less of a breaking and more of an autocorrect to a lifelong pattern of dealing with and processing my surroundings. In December we received the results of her extensive psychological evaluation. And I have sat on them more than long enough:
We have known since she was four years old that my daughter – like me – has the neurological disorder, Myoclonus Dystonia. This disorder primarily affects the muscles, causing sporadic twitches and muscles spasms. We have known for nearly as long that she has some sort of “mood disorder.” The severity of that has increased with time. Over the last several years, that has been complicated and exacerbated by divorce and living in between two households.
What we didn’t know – what I didn’t know for ten years – is that my daughter is on the Autism Spectrum. She is a High Functioning Autistic little girl, a “pattern consistent with Aspergers.” What we didn’t know – what I didn’t know – is that this whole time this has heightened and intensified her mood disorder. Or as the doctor who performed her evaluation informed me and my ex-wife, more likely, the Autism could be a primary driver for her anxiety and depression.
I worked for a year as a social worker with at-risk teens, struggling with depression anxiety and suicidal or violent tendencies, when the search for ministry placement wasn’t going anywhere. After my short time serving as a pastor, I work another two years, serving adults with developmental disabilities, many of them on the Autism spectrum. And yet I felt utterly ill-equipped and unprepared for this diagnosis.
But, I have spent more than enough time in my own “deep” battling the monsters and serpents that have reared their ugly heads and have raged within me. I have spent hundreds of hours in therapy recounting and learning coping mechanisms for my own crippling social anxiety. I have spent the better part of the last four years boxing with my own demons publically in the arena of spoken word performances.
Last year during Lent, I aired out a lot of that struggle and triumph in this space. The theme that I explored that I come back to most often, is the concept of the ripples. I never want to underestimate the impact of my own words and actions on the world around me, especially those closest to me. I have undoubtedly – and often unknowingly – fucked up. I have yelled, cried, begged and pleaded with my daughter to tell me why she is feeling a certain way when she literally cannot do so. I have often thought she was being willful and obstinant when she was rather frozen by going into a social situation with family she doesn’t often see or making a transition that from her mother’s house to mine or back, that her neurotypical brother seems to (in relatively little time) learned to do with ease.
Yet, I am not utterly ill-equipped and unprepared. I have those years working with troubled teens and adults with cognitive and emotional disabilities. More recently, and perhaps more importantly, several young adults on the Autism spectrum have found a home in the open mic community that I have the privilege to facilitate and host each week. I am learning from the fearless public performances of these brave souls and in private conversations, what to say and do and what not to say and do, when it comes to dealing with a child on the Autism spectrum. One friend and amazing poet who is on the spectrum, upon learning of my daughter’s diagnosis sent me several helpful websites and gifted me with a book for Christmas: What Every Autistic Girl Wishes Her Parents Knew. With each passing day and week, I am learning a little bit more about “life on the spectrum.”
We often don’t like to see in others – especially those we love – things that remind us of our own “deep,” the monsters we fight, the things we don’t like about ourselves. I don’t know about you, but I have a tendency to project my own inner world on those people, and thus fail to see them. I want to see my daughter. Her deep is not mine. Her parents did divorce. But her father is not largely absent from the equation like mine was during my most formative years. I know about my own anxiety and depression, that developed in a dysfunctional home and was compounded by a lot of toxic by religiosity. But everything I am learning about Autism is from doctors, books, websites, and most importantly from the friends dealing with it that the universe has brought my way. I need to be careful and more mindful of the ripples I send out. But I am also deeply and profoundly thankful for the ripples the universe has sent my way, preparing me for this, for the beautiful yet complicated gift that is my daughter.